Кого спасают первым? Медицинские и этические дилеммы: как решить их по совести и по закону - Джейкоб Аппель

Размышление № 44

Carmichael, Mary. “Newborn Screening: A Spot of Trouble.” Nature 475 (July 13, 2011): 156–58.

Gabler, Ellen. “Privacy Issues Stall Newborn Screening Bill in U.S. Senate.” Journal Sentinel, November 29, 2014.

Greenfieldboyce, Nell. “Screening Newborns for Disease Can Leave Families in Limbo.” Health News Florida, December 23, 2013.

Hazzazi, Hussain, and Ayman Al-Saidalani. “165,000 Engagements End Due to ‘Genetic Incompatibilities.’ ” Saudi Gazette, March 24, 2015.

Размышление № 45

Appel, Jacob M. “Rethinking Force-Feeding: Legal and Ethical Aspects of Physician Participation in the Termination of Hunger Strikes in American Prisons.” Public Affairs Quarterly 26, no. 4 (October 2012): 313–35.

Greenberg, Joel K. “Hunger Striking Prisoners: The Constitutionality of Force-Feeding.” Fordham Law Review 51, no. 4 (March 1983): 747–70.

Neumann, Ann. “Guantánamo Is Not an Anomaly – Prisoners in the US Are Force-Fed Every Day.” Common Dreams, May 6, 2013.

Размышление № 46

“Doctor ‘Fires’ Patients Who Refuse to Vaccinate Their Kids.” Associated Press, January 30, 2015.

Dominus, Susan. “The Crash and Burn of an Autism Guru.” New York Times Magazine, April 20, 2011.

Mejia, Brittny. “Doctors Turning Away Unvaccinated Children.” Los Angeles Times, February 11, 2015.

Размышление № 47

Cain, John. “Nonconsensual Surgery: The Unkindest Cut of All.” Notre Dame Law Review 53, no. 2 (1977): 291.

Gitles, Jay A. “Reasonableness of Surgical Intrusions – Fourth Amendment: Winston v. Lee, 105 S. Ct. 1611.” Journal of Criminal Law and Criminology 76, no. 4 (1985): 972.

Minton, Michael B. “Criminal Procedure – Surgical Removal of Evidence – United States v. Crowder.” Missouri Law Review 43 (1978).

Winston v. Lee, 470 U.S. 753 (1985).

Размышление № 48

Angell, Marcia. “The Ethics of Clinical Research in the Third World.” New England Journal of Medicine 337, no. 12 (September 18, 1997): 847–49.

Lurie, Peter, and Sidney M. Wolfe. “Unethical Trials of Interventions to Reduce Perinatal Transmission of the Human Immunodeficiency Virus in Developing Countries.” New England Journal of Medicine 337, no. 12 (September 18, 1997): 853–56.

Rothman, David J. “The Shame of Medical Research.” New York Review of Books, November 30, 2000.

Размышление № 49

Appelbaum, P. S., L. H. Roth, and C. Lidz. “The Therapeutic Misconception: Informed Consent in Psychiatric Research.” International Journal of Law and Psychiatry 5, no. 3–4 (1982): 319–29.

Institutional Review Board Guidebook, US Department of Health and Human Services, 1993.

Kolata, Gina. “What to Tell the Patients after a Trial Goes Awry.” New York Times, August 23, 2010.

Lidz, C. W., and P. S. Appelbaum. “The Therapeutic Misconception: Problems and Solutions.” Medical Care 40, no. 9 Suppl (September 2002): V55–63.

Rosenthal, Elisabeth. “When Drug Trials Go Horribly Wrong.” New York Times, April 7, 2006.

Woods, Simon, Lynn E. Hagger, and Pauline Mccormack. “Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research.” Health Care Analysis 22, no. 1 (February 2012).

Размышление № 50

Fels, Anna. “Should We All Take a Bit of Lithium?” New York Times, September 13, 2014.

Kapusta, N. D., N. Mossaheb, E. Etzersdorfer, G. Hlavin, K. Thau, M. Willeit, N. Praschak-Rieder, G. Sonneck, and K. Leithner-Dziubas. “Lithium in Drinking Water and Suicide Mortality.” British Journal of Psychiatry 198, no. 5 (May 2011): 346–50.

Schrauzer, G. N., and K. P. Shrestha. “Lithium in Drinking Water and the Incidences of Crimes, Suicides, and Arrests Related to Drug Addictions.” Biological Trace Element Research 25, no. 2 (May 1990): 105–13.

Размышление № 51

Bradshaw v. Daniel 854 S.W.2d 865 (Tenn. 1993).

King, Michelle R. “Physician Duty to Warn a Patient’s Offspring of Hereditary Genetic Defects: Balancing the Patient’s Right to Confidentiality Against the Family Member’s Right to Know – Can or Should Tarasoff Apply?” Quinnipiac Health Law Journal 4, no. 1 (2000): 1–38.

Schleiter, Kristin E. “A Physician’s Duty to Warn Third Parties of Hereditary Risk.” AMA Journal of Ethics 11, no. 9 (September 2009): 697–700.

Sudell, Andrea. “To Tell or Not to Tell: The Scope of Physician-Patient Confidentiality When Relatives Are At Risk of Genetic Disease.” Journal of Contemporary Health Law & Policy 18, no. 1 (Winter 2001): 273.

Размышление № 52

Abbott, Alison. “Regulations Proposed for Animal – Human Chimaeras.” Nature 475 (July 2011).

Appel, Jacob M. “The Monster’s Laws: A Legal History of Chimera Research.” GeneWatch 19, no. 2 (March – April 2006): 12–16.

Greely, Henry T., Mildred K. Cho, Linda F. Hogle, and Debra M. Satz. “Thinking About the Human Neuron Mouse.” American Journal of Bioethics 7, no. 5 (May 2007): 27–40.

Hilts, Philip J. “The Business of Manipulating Life.” Washington Post, April 21, 1987.

Karpowicz, P., C. B. Cohen, and D. van der Kooy. “Developing Human-Nonhuman Chimeras in Human Stem Cell Research: Ethical Issues and Boundaries.” Kennedy Institute of Ethics Journal 15, no. 2 (June 2005): 107–34.

Размышление № 53

“Bahrain’s Doctors: Harsh Treatment.” Economist, January 28, 2014.

Brinkley, Joel. “Dictators Spurn Their Nations’ Health Care.” San Francisco Gate, September 1, 2012.

Bueno de Mesquita, Bruce, and Alastair Smith. “In Sickness and in Health: Why Leaders Keep Their Illnesses Secret.” Foreign Policy, September 18, 2012.

Owen, David. “Diseased, Demented, Depressed: Serious Illness in Heads of State.” QJM 96, no. 5 (May 1, 2003): 325–36.

Размышление № 54

Green, Robert C., Denise Lautenbach, and Amy L. McGuire. “GINA, Genetic Discrimination, and Genomic Medicine.” New England Journal of Medicine 372 (January 29, 2015): 397–99.

Sullivan, Andrew. “Promotion of the Fittest.” New York Times, July 23, 2000.

Размышление № 55

Chen, Frederick M., George E. Fryer Jr., Robert L. Phillips, Elisabeth Wilson, and Donald E. Pathman. “Patients’ Beliefs about Racism, Preferences for Physician Race, and Satisfaction with Care.” Annals of Family Medicine 3, no. 2 (2005): 138–43.